Project Coordinator Contact Information
Maureen Colgan,
National Home Support Project Coordinator
926-294 Portage Avenue
Winnipeg, Manitoba R3C 0E9
(204) 947-0303 (phone)
(204) 943-4757 (TDD)
(204) 942-4625 (fax)
toll free: 1 866-947-0303
email: ccd@ccdonline.ca

Partners
Council of Canadians with Disabilities and Dr. Kari Krogh of the School of Disability Studies at Ryerson University are partnering in this initative.

Funders
This project receives funding and support from Human Resources Development Canada, Social Science and Humanities Research Council and the Canadian Institutes of Health Research.

Research Team Members
Mary Ennis, Chairperson, CCD Health Reform Committee
Kari Krogh, National Home Support Project Principal Investigator
Laurie Beachell, CCD Coordinator
Maureen Colgan, National Home Support Project Coordinator
Paul Gauthier/Joseph Terriault, Direct Funding Advocates

Panel of Experts
Gordon Argyle, Home Support Action Group
Brian Bertelson
Jim Derksen
Sandra Carpenter
Miriam Smith

Organizations Involved (to date)
BC Coalition of People with Disabilities (BCCPD) feedback@bccpd.bc.ca
Alberta Committee of Citizens with Disabilities (ACCD) tracie@accd.net
Saskatchewan Voice of People with Disabilities (SVOPD) voice@saskvoice.com
Manitoba League of Persons with Disabilities Inc. (MLPD) mlpd@shawcable.com
Persons United for Self-Help in Northwestern Ontario pushnwo@tbaytel.net
Confédération des Organismes de Personnes Handicapées du Québec (COPHAN) cophan@qc.aira.com
Nova Scotia League for Equal Opportunities (NSLEO) nsleo@ns.sympatico.ca
PEI Council of the Disabled peicod@peicod.pe.ca
Coalition of Persons with Disabilities - Nfld. and Labrador (COD) codmain@nf.aibn.com
Northwest Territories Council of Persons with Disabilities disabilitynwt@yk.com
Yukon Council on Disability ycod@polarcom.com
New Brunswick Premier’s Council of the Status of Disabled Persons pcsdp@gnb.ca

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Table of Contents

Title Page

Individual Interviews
A. Criteria for Identifying Individual Interview/On-line Survey Participants
B. Individual Interview/ On-line Survey Questions
C. Informed Consent Agreement - INTERVIEWS/ON-LINE SURVEYS

Focus Groups
A. Criteria for Identifying Participants in the Focus Group
B. Suggested Format for Focus Groups - Guidelines For Regional Coordinators
C. Informed Consent Agreement - FOCUS GROUP

Videotaping
A. Criteria for Individuals to be Videotaped
B. Videotape Guidelines
C. Informed Consent Agreement - VIDEOTAPED DEMONSTRATION/STATEMENT

On-line Discussion
A. Criteria for Identifying Participants for the On-line Discussion
B. Guidelines for Participating in the On-Line Discussion
C. Informed Consent Agreement - ON-LINE DISCUSSION

Level of confidentiality
A. Consent Agreement - LEVEL OF CONFIDENTIALITY

• July 18, 2003
  Provincial Home Support policies will be collected in each province/territory, using a template available on-line. The completed template will be submitted by July 18, 2003
• July 18, 2003
  In each participating province/territory, eight Individual Interview/On-Line Surveys will be filled out by consumers, with or without assistance. They will be submitted by July 18, 2003
• July 18, 2003
  A summary of the template information and issue highlights from the individual interviews will be submitted by July 18, 2003
• September 30, 2003
  One Focus Group will be held in each participating province/territory. The group will compare consumers’ experiences with information collected on the Home Care template and will explore a “hot topic” assigned to that region. Focus Groups will be held by September 30, 2003
• October 15, 2003
  A summary of focus group discussion will be prepared and submitted by October 15, 2003
• October 30, 2003
  One person will be identified to give a Video Demonstration of the “hot topic” assigned to that particular province/territory. This digital tape will be submitted by September 30, 2003
• Nov. 15, 2003
  Ten different, national On-Line Discussions will happen, one on each of the “hot topics” discussed in the focus groups. Moderated by one individual in each province/territory, they will be held prior to Nov. 15, 2003